Introducing OpenAvisio: a health record vault built out of necessity
· 3 min read
My child has Dup15q syndrome — a rare chromosomal duplication that brings seizures, developmental delays, and a lifetime of specialist appointments. Over the years, the paperwork accumulated: neurology letters, EEG reports, medication plans, therapy assessments, lab results. Each in a different format, from a different clinic, filed in a different folder.
When a new doctor asked "what medications has she been on, and when did the seizures start?", I could answer — but only because I had spent hours the night before going through binders. That felt wrong.
So I built OpenAvisio.